Takingconsent is not an easy process as we are getting someone permission by usingtheir data, knowledge and experience to use in a research and at the same timewe need to maintain the integrity of the information we have so it would havenot leaked out to other stranger that might use it for wrong purposes. Theprocess is vital in any form of research either is in written or verbalinformed consent. In the new world now days, almost everything we do require tohave informed consent.
The purpose to ensure the participants well verse aboutcoming event that they are about to participate and confidentiality of theirinformation. In the other hand, it is also protecting the other company whichis the provider or researcher especially when there are medical issues beingraised.Whenit comes about taking the consent, the researcher should have explained indetail of the objectives of the research.
The researcher should inform thefuture participants of all aspects of the research so that they are able toinfluence the participants to willingly joining them in the research. Theparticipants must aware the risk or benefit from the research and they can askany enquiries regarding the research that they are going to. Any enquiresshould be handle in full manner and professional way as to give a goodimpression on how serious they are (researcher) to get the participant’sattention to be a part of the research. Thereare a few issues that might disturb smoothness of the process taking theconsent.
The common issue is language. Most of consent are written in Englishversion and there are in certain country, they will use their own nationallanguage to write the consent. For those who would like to participate in theresearch but unable to do so because they are not fully understanding theconcept and need extra hands to help them translating the consent form thusit’s become time consuming. Some of if due to their unwillingness despite astrong explanation has given to the respective participant. Another reasoncould be that they are afraid of chances being misuses of their data by theresearcher. If patient insist for not tobe part of the research, just let go and do not create any force on them.
Participants do have right to refuse in any sort of treatment if they wantedtoo. Whenwe are taking the consent, it must ethically relevant. Patient’s priory comesfirst, and their own values is something that we must respect. There arecertain principles has been discussed related to this topic.
The ethical principlesemphasized more on beneficence and do no harm to them. So, as for that thereare five ethical principles should be considered when carrying out a research. Theprinciple number one is minimising the risk of harm to participants.
The typeof harm can be subjective to such as physically, discomfort and distress or aninvasion to participant’s privacy and anonymity. There is no reason whyresearcher wanted to put any harm to the participant’s, but it is somethingthat we could consider the risk of harm that we should try to be minimised. Theprinciple number two is obtaining informed consent which is the core of theresearch. Explanation and details of research need to be inform and wellunderstand by the participants.
Participants must be voluntarily, no force norbeing deceived to be involve in the research. Protectinganonymity and confidentiality is the fourth principle of research ethics. In research, these two components are importantas we should take care the information giving by the participants. Confidentialityitself in research means that the data must be protected but how far we couldsay and promise that data is being 100% protected and would not leak out? In research,the step of processing the data will go through some level of analysis and thiscould make the date been exposed to other people.
Researcher must maintain thepromises of keeping the data right at the place and privacy is applied. By makingthe participants anonymous, some how the researcher will unable to share theoutcome of the research that they have participate. Probably, they need to comeout some coding to identify the participant and at the same time no one able toknow about the participation.